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So Obsessed

Welcome to So Obsessed! This is my home on the net, where I post some personal stuff, fanart, memes and news regarding my screencaps and fansites. I have lots of wallpapers and icons here, as well as FocusWriter themes and more! Have a look around and I hope you enjoy your visit and come back soon!

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COVID-19 + Influenza Vaccines

COVID-19 + Influenza Vaccines

Ariane November 10, 2023 · Filed under Blog, Health, Personal · No Comments

Got my COVID-19 and influenza vaccines again on Wednesday morning. It hasn't happened before around vaccinations, but I've been having problems controlling my Crohn's Disease bowel symptoms since Wednesday evening. Yesterday morning and again in the morning today I felt sweaty and uncomfortable while the bowel/stomach symtoms were increasing again. Only feeling better once the anti-diarrhea meds kicked in. Weird. But it could also be because of menstruation. It's so much fun when I don't what's causing the worsening of symptoms because it could be any of a number of things! 🙄

Other than that, I only again got a sore arm from the COVID-19 vaccine and this time it seems to be pretty much back to normal re: the arm in only two days. The other times it took a week! So that's excellent 😁

I'm also disappointed that apparently the health care systems have forgotten how to arrange mass vaccinations - it's like it isn't the 4th year in a row they have to do it! Currently only risk groups are being vaccinated, and vaccines are running out (even though 2-3 weeks ago they said there's plenty for all who need it), apparently there's no kind of prioritization - healthy 65 year olds with no illnesses are able to reserve a vaccine appointment while over 80s who do have illnesses have to wait because vaccines are out or there's no time slots available. Old, frail people have to queue outside in the cold and the rain without chairs for an hour during pop-up vaccination events because and then for 15 minutes after, because it didn't occur to healthcare organizations that queuing happens when people try to get vaccinated and the premises are tiny. Just it's as if nothing was learned from the mass vaccinations of the last 3 years!


THL has even admitted that the COVID-19 vaccinations are done too late (started in this month) because the COVID-19 is already in full swing. But because influenza season is a little later, they're doing the vaccinations now because there's no resources to do two mass vaccination rounds - one in earlier fall, one closer to the New Year. Which I know and understand there's no staff for that. And still somehow, this is no cause to pay nursing staff more or to improve working conditions so that more people would want to work in healthcare.

Weird September

Weird September

Ariane September 29, 2023 · Filed under Blog, Personal · No Comments

This September has been so weird! Normally the average temperature in September is around 10-12 degrees Celcius, but this year the temperature has been closer to 20 than 10. Days have been around 18-19 degrees, with nights going down to maybe about 14 from what I've observed. It certainly isn't normal to be having 18 degree days when October is only a two days away. Usually I don't have to have my fan running a lot in September anymore, but I've been running it every day at least for a while because it's too warm inside and keeping windows open.

But somehow it hasn't been warm like 18 degrees should be - instead it's been kind of chilly/sticky/maybe sunny and if you put a thin long sleeved shirt on, it's too much but if you're in normal short sleeved t-shirt, you're kind of almost cold. It's like you can't get comfortable no matter how you dress right now 🤨

Or maybe it's just my body that is is out of whack... most other people are wearing normal autumn clothes (wind proof jackets and trousers, closed shoes) and I'm in my summer outfits because I get hot if I wear even thinnest long sleeves, but kind of cold but not really if I'm not wearing it 🤪 And the past little more than a week, every morning around 9-10 I notice I'm hot and sweating indoors when all sense says I shouldn't be and there nothing causing it as far as I can tell. So is the weather weird or am I when I feel the weather's being all muggy and sweaty and weird for being September? My Mom did say the other day after having been out for a stroll that she thought too the weather was weird that day. Honestly though, I wouldn't be surprised if it's my body being weird considering all the chronic illnesses and deficiencies it has and the amount and number of medications needed to keep it functional!

Not to mention, I'm the age that statistically I might/should be in  perimenopause now or start it any moment now. I can't tell whether I am or not - I don't have any of the typical symptoms I've read about except the hot flashes thing but I've been getting easily over heated since I was a kid and nothing's been so out of the ordinary that I could say for sure I'm in perimenopause. No to mention that my chronic illnesses themselves and their medications can affect the body's ability to control temperature as well somewhat, according to my doctors. And I've also read that there are also women who don't get the symptoms or hot flashes and only realize they're in menopause when their periods stop, and that you can't know whether or not you'll get mild symptoms, horrible symptoms or no symptoms at all until they happen or not. Anyway, menopause is on my mind somewhat the last few years because I'm so ready to be done with periods!

Anyway, September has been weirding me out and that's never happened before!

Health Update - May 2023

Health Update - May 2023

Ariane May 1, 2023 · Filed under Blog, Health, Personal · No Comments

TL;DR: Ajovy made my head better by some margin, but it doesn't help my overall situation much. Because of the background headache that so far nothing has touched.

- I've now been using Ajovy for 17 months and my actual migraine attacks (Level 3) have reduced from 8-9 a month to 1-3 a month

- I haven't noticed any negative Ajovy side effects at all

- The actual migraine attacks' intensity has also lessened, so that now I sometimes can't tell whether I'm having an actual attack or just a bad background head ache day.

- Still no completely headache-free days, but last year I had more Level 1 (mild background head ache, doesn't stop from doing anything but you notice it) than ever before since the migraine going chronic in summer of 2008. A good number of the Level 1 days have an hour or few where I experience just a weird head-feeling for an hour or two and actually feel **good**. That counts as headache-free now.

- I've had mostly Level 2 (bad background head ache, have to limit what you can do and for how long) days since mid-March. I think it's because around that time it got spring bright and sunny. I've never before noticed a difference so clearly before between my winter head aches and spring/summer head aches! Nothing else has changed nor are there new external stressors that I can think of, so I really think it's the bright, sunny weather that's giving me these majority Level 2 weeks.

- It's hard to be patient with these Level 2 days because I had gotten used to only having about 13-17 days of a month being like that. Now it's around 20-22 month :(

- I used to be able to tell between Level 2 and Level 3 because the actual attacks always throbbed. But now sometimes there's no throbbing but the pain is hard enough that if I were working, I'd probably take a sick day or leave work mid-shift. Usually I use the cold gel pads to ease my head like in an actual attack and it feels really good. Currently I'm always marking such days as migraine attack days in addition to the actual migraine attack days, but I'm not sure yet how I should handle the logging. I feel like I should make a new level for these days, but I don't know.

- Since starting Ajovy, the headache doesn't tip into a full blown migraine attack as easily anymore. It just aches really hard and feels like it will tip into one at any second. Before Ajovy, as an example, whenever I visited someone, whether that was my Mom or my best friend (where I don't have to pretend anything and can be my full self so it never stresses me), I'd always get a migraine attack in the evening. Often it would start already before I even left for home. It'd always happen if the whole trip took more than about 2-3 hours. With the trip there and back home again with the bus, the trips usually take at least 5 hours. Sometimes I'd only drop off something, would only stay for around 15 minutes before heading back and the whole trip would take two hours altogether; those were the times I wouldn't get an attack.

- Same thing with all my medical/professional rehabilitation things before Ajovy - those days usually last 4-6 hours, not counting trips. The trips there and back home add another 2 hours to day. I'd do okay until about the last hour or even through that if it's a good day - but then on the way home (roughly one hour one way) the migraine attack slowly begins. No meds could stop that. And that's why I ended up on a new year long sairaspäiväraha/long term sick leave again. And some of those rehabilitation things were only once a week but it made no difference - migraine attack in the evening the latest.

- So before Ajovy, from experience, my head couldn't handle more than about 3 hours of controlled by outside forces structured rehabilitation/work/studies away from home, even if that only happens once a week.

- At some point I'll have to try rehabilitation again now that we've seen what Ajovy does, and I'm not looking forward to it. At least right now, with most of a month being Level 2, I fear it would easily tip over to many, many migraine attacks again. Or even barring that, just a hard Level 2 headache all day, every day. I might be crazy, but I think if working makes you physically hurt horribly or makes your illness worsen so much you end up on a year long sick leave time after time, it shouldn't be required of you.

- There's no opportunity to try to do same kind of controlled by outside forces structured rehabilitation/work/studies but at home, to see if my head could handle that. Some day I'd like to try that, but I've never seen or heard about a rehabilitation thing that involves working at home. It's always something you have to go out for for many hours.


Health Update - February 2023

Health Update - February 2023

Ariane February 24, 2023 · Filed under Blog, Health, Personal · No Comments

Good news and bad news!


- had my yearly routine control for Crohn's Disease in the hospital last week

- my calpro (faecal calprotectin) is somewhat elevated, so looks like I have inflammation in the bowel. But my symptoms have been stable for a couple of years now (better than ever before). No change in medication is deemed warranted right now, but it's coming up on 3 years since my last coloscopy. So a new coloscopy is scheduled for September/October. Not yay, but needs must.

- iron levels are bad again. They're giving me another iron infusion, a bigger dose this time, on next Monday. I got the first one last March, in May the ferritin was 80 and now it was low again, only 23. I can't take iron tablets anymore; I've been taking them practically 20 years for about 10 months every year, and my ferritin kept lowering. The iron tablets as well as the liquid version also started to cause worse diarrhea. It took a few years of me pushing and talking about the low ferritin and my symptoms but finally last year and now, I didn't even have to ask for a iron infusion - it was offered to me! This is good!

- learned that much more research has been done in the recent years in much more IBD patients because IBD is becoming so common, and that the danger of colon cancer in Crohn's Disease patients isn't as high as previously thought. Only two times more likely than in a healthy individual of same age. And actually the chances of doctors catching it quickly are much better because of the regular colonoscopies people with Crohn's Disease have to go through. He said that the chances of me dying from colon cancer is practically zero because everything suspicious seen in a colonoscopy is biopsied and removed so cancer won't have a chance to develop and spread. The doctor said that if I die from colon cancer, it'll be because they the doctors and the hospital have royally fucked up. So that was new information!

- in bad news, my right inner thigh started to hurt on Sunday :/ It's been "feeling" for about a year, but not actually hurting until now. The bad thing is that the pain is exactly like my Mom described her pain before she underwent the hip replacement surgery a few years ago. Good thing is, there's a chance that it's Crohn's Disease related - apparently, often the big joints in the lower extremities can start to hurt when there's active inflammation which I have right now. I had a bad bout of Crohn's symptoms on Monday, the day after the thigh started to hurt. Anyway, if it is related to Crohn's, it's my understanding that there's no physical damage on the joint? And that proper medication for the Crohn's Disease can make it go away. Or that it might just go away on its own - I think I saw somewhere that it might go away in six weeks if it's Crohn's related?

But. I'm obese. And being obese is a risk factor for actual hip arthritis. Age is as well, but I'm only turning 49 this year and it's my understanding that's quite young? I also have Diabetes and autoimmune disease which are both risk factors so who knows why. I haven't yet contacted health care about this - I want to get the iron infusion done first, which is on Monday. I also want to see if it hurts all the time, and what activities make it worse and if any make it better. Because they are going to ask about that anyway. But my inner front right thigh has been hurting all the time since Sunday, most of the time I can walk normally but more or less in pain. Sometimes after sleeping, I limp a little for a bit because the pain is so bad. Ibuprofen helps, but doesn't remove the pain completely. Only time it doesn't hurt is when I'm sitting on my couch, and in some positions on the bed after a while. I've started to do the exercises I found online for hip arthritis.

This is again just what has been happening the last 14 years - whenever things settle down, or even have gotten better, some fucking new health problem crops up. My body is really just rotting away, isn't it? If this thigh thing turns out to be not related to Crohn's Disease and is permanent - I just might throw a tantrum like a two year old....

Also, got my 5th COVID-19 vaccine last week - the bivalent one! :-D 

Health Update

Health Update

Ariane September 30, 2022 · Filed under Blog, Health, Personal · No Comments

This week has been a trying week!

On Sunday my period started two days early which - okay, good at least it's not late which is used to be a common occurrence so I rather they start early than come late. But means that I have steady stomach pain for however many days I bleed and that's felt like an extra cruel punishment on top of everything else ever since I got sick in 2008. Then on Tuesday Crohn's Disease decided to join in on the fun and cramp really well! I was SO much pain for two hours before the pain meds kicked in - cold sweat, white face, weakness and feeling like I'll faint, I got it all :( Then after the pain meds kicked in, pain gone but felt still weak and weird and because it happened in the evening, a little of the weird feeling continued the next day too. This happens sometimes during my period since I got the Crohn's diagnosis, so luckily I knew that the meds would help and I just had to wait for them to kick in so I didn't really worry about whether I should go to the hospital or anything like that like the first time it happened.

Then on yesterday (Thursday) a migraine and lower back pain, and last night again a mild migraine and today Friday also the same lower back pain. I don't get why the back pain all of a sudden - I used to have bad lower back pain in my 20s when I had too heavy periods and even in between, but when we got me bleeding less the back pain got better too and I've only gotten a little bit of a back pain during my bleeding days for almost two decades now. But yesterday and today it was bad again like it was before, although it has eased up the more I have moved. I don't think I've pulled anything, but maybe I've slept in a bad position or something? I don't feel it when I lie down but when I get up in the morning, I feel shooting and nasty twinges at first and then it starts to ease up but doesn't go completely away as I move about. I hope this back pain doesn't become a feature outside my period - I don't want to have to deal with anything more - at least, not any more pain! Fingers crossed.

Other health related things... after I had the iron infusion in March, I noticed that my eyes focus better and don't get what the optician and my doctor told me was "age sight": that eyes get tired faster and it's hard to focus them when you get older. I used have many times a week trouble focusing my eyes even first thing in the morning even though I had slept through the night. This went on a couple of years and nothing helped, not even getting new glasses. But after the iron infusion, it stopped happening until it started happening again now in September. My hand joints also stopped hurting after the infusion, and haven't restarted yet. I don't know what my ferritin is currently - in May it was 80, and in March before the infusion it was 20. At least ferritin of 100 is recommended for IBD patients in literature here, but that directive isn't followed at all. I'd been trying to raise ferritin by taking oral iron supplement for years but it didn't help. I didn't think the infusion helped with the exhaustion, but maybe it did a little bit - because the last couple of weeks I've been terribly exhausted again, like I hadn't been for a little while but I can't swear the last time was before the infusion. It also could just be the legal stuff I've been dealing with (re: the adoption which I've written in another post) the last two months, and my Mom's health stuff as well. It's been mentally hard since the start of August so that could a major reason for my exhaustion too. Because I'm a spoonie and don't have enough energy even for normal days, anything extra, whether it's physical or mental, can hit me hard and mostly it seems to show as exhaustion and tiredness.

Sometimes I feel bad about always posting bad things when I do these health updates, but the truth is that I don't have good weeks. My weeks are "okay" usually, and "bad" more often than I'd like. When days and weeks are "okay", there's nothing to write about. They're just full of just routine and usual typical things which in my case, are either neutral (like going to grocery shopping, paying bills etc. etc.) or some kind of negative (the adoption thing, or when I have to deal with bureaucracy of being sick and/or unemployed etc.) or major or minor pain (I have pain every day, just the intensity and location varies)... things that don't stand out of the rest. I'm so limited in what I can do due to pain and exhaustion that I don't do things like go to concerts or movies or see my friends weekly that'd be positive to make updates about. I'm mostly limited to just being home on my own.

Good days happens sometimes but often I realize it actually was a good day only the next day (because if a day has been good but then I get a migraine in the late evening, well that doesn't feel much like a good day anymore then because you mostly just remember the throbbing head pain) when I see that I had no notable headache the day before. And good day doesn't mean I did something out of the ordinary - it just means I had notably less pain than most days. A truly good day is when I have no notable pain *and* I see my best friend or Mom, and these days are so rare - maybe only once or twice a year now. So "okay" is my reality the vast majority of time but it does make for boring updates. But actually I'm grateful for "okay" because back when I didn't have Crohn's Disease diagnosis yet and my headache/migraine was much worse than it is now, "bad" was 100% of the time for many, many years. So I'm okay with "okay". Although I hope for more good days!

4th COVID-19 Vaccine

4th COVID-19 Vaccine

Ariane September 9, 2022 · Filed under Blog, Health · No Comments

Got my 4th COVID-19 vaccine yesterday! Finally! Felt like THL sure did sat on it this time for my medical risk group despite the number of cases sky-rocketing during the summer 8-O and despite saying that the protection against serious disease only lasts a few months. At one point they said Finland would wait for the updated vaccines before starting the 4th round except for the worst medical risk group. Only thing was that at the time it wasn't even known when those vaccines would be approved for EU and then for Finland, so there was an out-cry that it might be November/December by then and much too late for the autumn COVID-19 cases increase and THL changed their stance. Luckily. 

I got my 3rd vaccine in early December so I've been feeling more or less in danger all through the summer. Avoided crowds and kept safe distance from other people because of that, while still trying not to become a hermit.

So far the jab site is slightly red and the arm muscle is a little sore, but not nearly as bad as the previous times. Yesterday I suddenly got a worsening headache 1,5 hours after the jab, and I think it's because of the vaccine. It came on much faster than my migraine usually does, and responded better to the headache meds. So I'm thinking it was a vaccine side effect, but can't really be sure.

I don't get it - the authorities and politicians handled the first two years of the pandemic so well, why has this year been so bad and the attitude even by the authorities seems to be that it's over even though the hospital system is suffering due chronic under-funding and under-staffing of nurses and devalue of nurses' jobs? As if suddenly COVID-19 isn't putting more pressure than normal on the system that was already cracking under the weight of the pressure long before COVID-19 came along? Why add to that by risking having even more patients because they're in risk for serious disease and complications and that then happening by not vaccinating them if the powers that be themselves admit that the vaccines prevents deaths and long intensive care stays or even hospital stays altogether? I trust science and doctors and tend to believe that organizations like THL does what is best for the nation, but sometimes it's very hard.

Good Weekend!

Good Weekend!

Ariane May 10, 2022 · Filed under Blog, Health, Personal · No Comments

This past weekend was a really good one! I slept really well for two consecutive nights, accomplished a lot on Saturday and then Sunday was Mother's Day. Even Mom had slept well (she has sleeping problems as well) and we had enough energy to make food, to make dessert (we don't usually have dessert), then to make hot sandwiches for coffee and to even putz around their laptop, making sure everything is up-to-date. Both Saturday and Sunday my chronic migraine was good, almost gone, and I felt nearly healthy. I can't remember the previous time I've felt genuinely this well health wise. It was so nice to have an almost pain-free two days and see my Mom! 🥰

 

The Friday Five for April 15, 2022 - Generation Gap

The Friday Five for April 15, 2022 - Generation Gap

Ariane April 16, 2022 · Filed under Blog, Memes & Asks, Personal · No Comments

Health Update & Rambling

Health Update & Rambling

Ariane April 14, 2022 · Filed under Blog, Health, Personal · No Comments

Iron Infusion

Iron Infusion

Ariane March 16, 2022 · Filed under Blog, Health, Personal · No Comments