Categories Blog Personal

Washing Machine Broke + Old Household Stuff

My 30+-year old washing machine finally gave up the ghost last Wednesday, and we went and bought a new one yesterday. It was delivered and installed this morning! I’m speechless that I got it so quickly – in our experience, it’s usually taken 1-2 weeks!

I’ve been expecting this for like the past decade – computers ares my only newish machine that I’ve replaced frequently, and that only because my programs either stop running in them or become painfully slow. But things like washing machine, kitchen table etc… if it works ok, I’m not going to buy a new one just for the hell of it. Even if money wasn’t an issue all the time, I wouldn’t – I was brought up to avoid unnecessary buying. I’m just surprised that it was the washing machine that went first – for some reason I kept expecting it to last forever, literally, and that the fridge would be the first to go. My Mom bought the washing machine in the latter half of 1980s when my Dad was still alive but very sick with cancer, and we knew he wasn’t going to get better and how long was the only question left. I’d say 30+ years of service is respectable time – they don’t make them like that anymore :/

Continue reading Washing Machine Broke + Old Household Stuff

Categories Blog Health Personal

Heat Wave + Health Update

It’s the third heat wave week here, and I’ve been dealing with it better than ever before (even than when I was healthy!) this year – last night was the first night I felt like the heat didn’t dissipate inside after sundown. And so it was too hot to sleep – I was able to lay down only for about 4 hours, and I do think I dozed off but none of it was proper sleep. So now I’m feeling like a zombie. Good news is that Sunday should be the last truly hot day, Monday should be warm and then onwards as far as the prediction goes, 20 degrees Celcius or below, which these days to me is cool. I can’t wait! 😀 *dances happily*

Continue reading Heat Wave + Health Update

Categories Blog Health Personal

Finland Has Declared State Of Emergency Because Of Coronavirus Disease 2019

My country Finland has declared a state of emergency because of COVID-19 starting today (March 18, 2020) until April 13th. I’m okay so far but I belong in the high risk group because of three of my chronic illnesses or their medications, and in addition I’ve been having a Crohn’s Disease flare since early January so I have been mindful already the last few weeks, and will continue to take as many precautions as I can going forward to avoid getting COVID-19.

Right now, I’ll continue to update sites and making wallpapers etc. as normal, but should I disappear for a bit, it’ll probably have to do with COVID-19 and/or Crohn’s Disease.

The nationwide shutdown of services is going to be weird – due to my illnesses, I don’t go out much because I don’t have the energy and my migraine is ofteen too bad or it would make it worse, but still! I’m used to going to the rehabilitation activity and talking to people, as well as to library every week and always having at least a few new books to read! Now I’ll have to resort of e-books, which is a huge relief that they exist! I think it’s also think it’s going to take a toll, staying home because I have to, not because I want to and not having face-to-face social contact. (I live alone).

My Mom is 75 and her SO is 80, so they’re both also in the risk group and they have some illnesses. I’ve been trying to talk them into either taking advantage of their neighbor’s offers to grocery shop for them, or to do grocery shopping via the internet and have them delivered home. So far, nope. They think they’re ok going to the shop in the off-peak hours ;/ I might be able to talk my Mom over to online shopping, but she said even if she did, her SO wouldn’t. He’s stubborn.

Also it’s kind of scary, being in a national state of emergency, when I think about it! The last time that was declared was WW2. So it’s a whole new thing. Although I did consider during the swine flu, remembering the bird flu and liking The Walking Dead and movies about epidemics, that it was only a matter of time until outbreak big enough to cause societal interruption would come along. So it’s not a total surprise, and I feel like I’m at least a little prepared, mentally.

Categories Blog Health Personal Star Trek TV & Movie Thoughts

Health Update + Star Trek

Health update after a long while.

I’ve been flaring since early January, with my Crohn’s Disease symptoms somewhat worse in general but getting out of hand particularly when I’m on my period. I had my yearly Crohn’s Disease control labs and doctor’s appointment in the university hospital on February 3rd. There’s inflammation in the bowel and I’m not surprised because of said increase in symptoms, but at least for once it happened right when I had to have the labs done anyway, so didn’t need to do anything extra! The doctor upped azathioprine back to the original dosage and added in cortisteroids for three months because azathioprine takes that long to start to have an effect. Labs every three months and in August I’ll hear if the inflammation has improved. If not, the doctor said we’ll have to consider starting a biologic.

I don’t know yet whether cortisteroids has helped the inflammation any, but I’m certain it’s made both my chronic migraine worse as well as my sleeping problems. Because headache and sleep problems are among the many side affects listed, and both have gotten very much worse in the two weeks since I’ve been taking it. My basic, daily migraine headache pain has gone from 3-4 to 5-6, and I’ve averaged obly 3-4 hours of sleep a night for 1,5 weeks now, not all of it even continuous sleep. I’m having trouble both getting to sleep, and staying asleep, and I’m having a lot of dreams again. These two things are currently really making my life hard. I’m not sure whether I should be in contact with the IBD nurses – the last time I was on cortisteroids, I was in bad enough shape with the migraine and sleep that I didn’t feel any additional effects regards headache or sleep from cortisteroids, or just didn’t have them. But now that both my daily migraine has been somewhat better and especially sleep has been a lot betterer, although not good like it was when I was healthy…. this now feels very hard to endure, and I’m not sure whether I’m supposed to or not? I’m also a little worried that the side effects won’t go away after ending cortisteroids. It was a long road to decent sleep, and I despair thinking it’s gone away again 🙁

So far, I have missed one rehabilitation day (with a doctor’s note) out of three because of the flaring, and would have missed more if there hadn’t been a break in rehabilitation for most of January. I have a rehabilitation day tomorrow (Wednesday), I’ll see how it goes and the rest of the week and then maybe contact the IBD nurses if I still feel as bad? Maybe I actually should be on sick leave?

If I go silent for a while, and don’t make any updates, my health is why. I’m so tired I made an incredible number of spelling and wrong word mistakes while writing this, hope I caught most of them!

Other thoughts... it feels really strange to be finished with capping Star Treks DS9, VOY, TNG and TOS! (Never have had plans to cap ENT or early seasons of VOY, so I’m in effect finished except for new eps of PIC and DSC) Feels like there’s this huge hole now because the need to cap them has been in the background for like 20 years. Good thing there’s Picard, and Discovery. Also, this is the first time in my life when I have ready and easy access to currently airing Star Trek. That feels so weird too!

I’m enjoying Picard a lot, I love the slow, considered space that gives the characters time to breathe! I’ve always loved Romulans, so I’m happy to have much focus on them. And I love that we’ve been getting glimpses of life on Earth, and civilian life too. I don’t think any other Trek ever showed more than brief glimpses of that and it was always with guest-stars, too. And I squeed when 7of9 beamed in in the last few seconds of episode 4 – she’s been missed!

Categories Blog Health Hiatus Personal

Back From ER – I’m On Hiatus

I just got back from the ER where I had to go early this morning because of the migraine. They managed to knock it down back a lot – not completely to get rid of it, that never happpens at anytime – and I’m currently feeling better. But it kinda feels like it might flare up again in hours/days because the sunny, hot weather will continue at least for the weekend and so there’s just too many triggers. So in an effort to avoid it going bad enough for another ER visit to become necessary, I’m going on hiatus.

I might do some Tubmlr edits or wallpaper stuff if I feel like it, but no fansites will get updates until I’m feeling I’m out of the immediate danger of it flaring badly.

Categories Blog Hiatus Personal Star Trek

Maybe A Hiatus For My Fansites?

Looks like the next 10 days are going into kill me already and be done with it territory with temperatures between 26-31 Celcius. This past weekend already nearly did me in. I’ll propably be on hiatus as far as all my sites go, until this stupid heat is over, however long that takes – two weeks, two months… who knows! I hope my fan keeps working, it’s six years old now and I worry it’ll break down just when I need it the most!

In breaking news, Jeri Ryan has apparently signed on Star Trek: Picard 😀 Here’s hoping it’s a meaty role, not just a cameo!

Categories Blog Health Personal

Health Update

I getting up on 300 days of sickeness allowance at the end of this month (300 days is the maximum; after that one has be fit for work for at least a year to re-qualify again for the same illness) because of my migraines.

So now I’m applying for disability pension/temporary disability pension now. I never thought until a couple of years ago I’d ever have to do that this young (I’m 43). Disability pension has become notoriously hard to be approved for the last decade or so, propably tens of thousands of people are kept on unemployment despite them, their doctors and the unemployment agency knowing full well that they are not able to work. But insurance doctors think otherwise, without ever seeing the patient. So I’m not at all sure I’ll be approved. If not, I’ll join the ranks of people on wrong damn benefit.

It’ll take them about 2-3 months to process my application, keeping fingers crossed!

I’m not even sure I truly want to be on disability pension but that’s really the right place for me untill and unless the migraine gets a lot better (and doesn’t get worse again when trying out working or whatever). And it would be mentally much better than being on unemployment and feel like I’m not hanging in a loose noose. As long as I’m on unemployment but not able to work in reality, it’ll be stressing because you never know what the TE-toimisto will think up like unpaid work. And things have been going really badly for the unemployed (and just generally the poor) the last several years while the right wing politicians are in power, and they have still more bad changes in the pipeline for the unemployed.

But yeah, I never thought I’d be here when I was younger!

Categories Blog Health Personal Rant Weather

Hot Weather + Sites May Go On Hiatus

It’s been a miserable summer since May. It’s been hot nearly all the time – both “hot-for-me” and legitimately hot, and it just seems to be getting worse and worse. Yesterday was 32 (Celcius), today it’s promised to be 33 with no cloud. I just barely made it through yesterday, today stretches long and torturous in front of me. It’ll feel like dying.

I can’t even think of tomorrow yet.

It’s promised to stay well above 25 for the next 10 days, but hopefully that gets adjusted downwards to something more normal as the days go by.

My migraine is bad and getting worse, and also I’m feeling just bad overall due the bright sun and the constant heat. I’ve reached the limit of my ability to stand the heat for this year, and now it’s taking all I have to just exist. I don’t know that I’m able to work much on my sites or anything online until the heat is over. So this is your Hiatus warning. It things go well, I’ll be back to normal later this month but it may just as well be end of August or early September before I have energy for anything beyond surviving. Totally depends on the weather now.

I’m writing this at 5.30AM and it feels weird. I’m not a morning person (at all!) but these days mornings are the only time of day I can breathe and feel normal for a couple of hours. That’s when I have to do all the household work and grocery shopping and such right now.

Hey Finnish Summer, I’m ready for you to go back to normal! Cold and gray, rain and all!

 

Categories Blog Health Personal

Back From The Hospital

Everything went smooth and easy, and I got back home about three hours ago. I’m sore but much less than I thought I’d be… though the pain killers they gave me might still be working at a base level so we’ll see what’s tomorrow like. I’m hugely tired but it’s a good tired  :cheer: