Categories Health

4th Colonoscopy

Tomorrow’s my 4th colonoscopy. Yay. CRP and CALPRO still elevated, although CALPRO has come down about half from the previous. Still high though. Meds not as effective as hoped. So the docs what to see what my bowels is looking like now, is there inflammation left and how bad. I altready thought I might escape without a colonoscopy this time, the doc took a long enough time to suggest it that I hoped it, but no such luck 🙁

This time they have me do the bloody awful, horrible emptying in parts: part 1 today and then tomorrow part 2 early tomorrow morning. All three times before I’ve done it in one, which took 8-9 hours all in all and was hell. Much worse than the procedure itself. But maybe this “do it in two parts” is easier? Common sense says it should be… fingers crossed…

Categories Rant

What The Hell Is Glipho?! And Why Do I Suddenly Have An Account There?!

Just got an “Welcome to Glipho!” e-mail. What the hell?! I had never heard of it, much less registered an account. So apparently someone took the freedom to do what for me?! What the fuck?! What makes them think they have to right to do that, what makes them think I want yet another account I’ll never use????

Categories Rant

Dear Weather Gods

Have you forgotten what the “wave” in heat wave means? You come… and then you go. See? Simple as that. You don’t stay. And stay. And stay. With no concernible end in sight. 

Just a kind reminder. Thank you and goodbye.

PS. Dear Weather Gods, you must have confused Lappland with some Mediterranean country. Lappland isn’t supposed to have +30 degrees Celcius weather. Like, never ever.

 

Categories Fansite news Hiatus

Hiatus

I’m going on a hiatus for 1-2 weeks, due to personal, health-related reasons. During that time, I’ll deal with any server issues and problems and script updates as normal should there be any, but all other things will be on hold.

Categories Health

Health Update

Heard back from the colonoscopy today – and looks like we finally, after 4 long years, may actually really have a true diagnosis! It’s not 100% definitive yet, but the pathology indicate Crohn’s Disease – the inflammation is mild so apparently it’s uncertain because of that. So they’re going to put me on corticosteroids now and if that reduces the chronic diarrhea, apparently that will confirm the diagnosis and then there are treatments.

There’s no cure to Crohn’s Disease nor do they know what causes it, and there and certain elevated health threats come with it. But if it’s that – I’ll finally have a name for what ails me, a real illness, treatments to be tried that perhaps can make it better and that makes all the difference! … But still not getting all up and jumping for joy – this may turn out to be another false start, after all, again. Better to just wait and see what effect the corticosteroids have on me. But yeah, at least all the damn work I did preparing for the colonoscopy didn’t go to waste; I’m happy for that! 😀

Categories Personal

Slow Internet

Noticed an hour ago that my internet is slooooow. I did a speed test and download stream is only 2.2MB when it should be 10MB. The upload speed is normal. Why does it always have to be the end of the week?! :/ I’ve never had internet connection problems at the start of the week so it always takes forever to fix them :/

Checked my ISP’s info page and there’s been G3 and G2 speech data transfer problems in the town next over affecting people there since noon that they’re currently working on to fix, and it logically should not affect anyone’s ADSL here but from past experience I know that it somehow can, so I don’t want to report it until the page says it fixed so that I can if my problem fixes itself along with it. Which it being 3pm now means tomorrow if it doesn’t, and tomorrow being Friday means they’re not going to work on it until some day next week :/

 

EDIT – 3,5 hours later : well, wouldn’t you know – the page says the problems in mobile data transfers in the town next over which shouldn’t affect fixed ADSL here, is now repaired and so is my internet! I don’t get it but as long as it works…

Categories Health

Health Update

Had my third colonoscopy yesterday. This one took the longest, an hour and I think 20 minutes. Considering how my symptoms have been behaving the last several months and that I had a bad spout of diarrhea on Saturday and had to take a lot of Imodium to get it stop and then had no bowel movements at all before starting the fun fun fun thing on Tuesday night (3 days later which is not-rare now after taking Imodium these days – a few months ago, I needed to take it daily so it’s been changing lately and difficult predict when and how often), I suspected that the fun fun fun thing hadn’t cleansed the bowels completely… Unfortunately this turned out to be true 🙁 So they they had to do a lot of flushing going in, and that’s why it took somewhat longer because of that. I told them how I’d done the fun fun fun thing and it was correct but just hadn’t been enough. I used Moviprep which I used the first time and it worked great then.

There definitely is some irritation/inflammation going on in one particular place of my large intestine (even I could see it) but they couldn’t say what might cause it by look of it. Also there was somethings that I can’t remember in my small intestine that could or could not be related to the large intestine irritation/inflammation, so yeah something’s definitely going on – which we’ve all known for years now. I just hope itsfinally something they can actually the finger on and treat, and not just say again that despite everything nothing particular was found and so it’s Irritable Bowel Syndrome or bile acid malabsorption or maybe a mixture of both and I just need to keep going on like I have been. Then I’d have gone through all this for basically nothing 

The staff was very nice and competent, I was conscious the whole time and could follow the process in a monitor most of the time. The man who wielded the tube, often told me what I was seeing on the monitor and when they were taking biopsies from the irritated part and it bleed, he explained that bleeding was one of the signs of inflammation and then later showed me what healthy part looked like. It only hurt in one part and the nurse gave me a pain injection immediately which also worked practically immediately, after that there was it only was uncomfortable, especially when both the nurses had to press down hard on my belly at one point. That was the worst but it wasn’t pain.

I’m not getting my hopes up – been there, done that too many times. I’ll just wait for the results and then see what’s what 

Categories Computer Woes Health

Monitor & Sleeplessness

In case you’ve noticed & wondered why, I haven’t been posting much anything latelythat needs weeding out the bad caps in the last several weeks, or wallpapers/icons at all. The reason is:

My 6 year old main monitor – which is a big external one, and the one I solelydo all work on everything on because it’s comfortable to work on for hours at/with unlike the laptop monitor – broke down about a month and a bit ago, and I bought a new one pretty much right away – HD, widescreen, 1920×1080 native resolution Acer monitor. Unfortunately, my trusty but also 6 years old Spyder (it’s so old, it’s not even called Spyder but ColorPlus) can’t calibrate it at all – its technology is too ancient. I couldn’t afford to buy the current generation Spyder4Pro until this week, which I did today and I can’t wait to for it to arrive so I can get back to normal as far as computer stuff goes. I tried but for the life of me, just like the old monitor, I can’t calibrate the new monitor manually at all to use comfortably for anything more than about 15 minutes a time without straining my eyes – it’s just way too bright. Graphics work is out of the question, everything looks too faded. So, it’ll have to wait a proper calibration with the Spyder. Side note: weirdly though, it took me about two days to get used to the widescreen dimensions of it and now it feels more natural than any other monitor I’ve ever used before even though I haven’t used it that much yet. 

In health stuff, my Thyroxin dosage was increased from 75mikrog to 100mikrog a day – all went well while I took 4 pills (4x 25mikrog) because I had just started the damn bottle so I of course wanted to use them all up, and only then start the new prescription bottle which is the same dosage but in one single pill (1x 100mikrog). I don’t know if it’s the 100mikrog pill or what, but I started taking it two weeks ago, and I haven’t been sleeping well since then 🙁 It’s like I’m half awake, half asleep when I sleep and I can’t say for sure if I slept at all. End result, I’ve been feeling kind of off and listless, not wanting to do much of anything. Including computer stuff.

I had to go the dentist today, and the sleep thing has gotten so bad, last night I took one of those mild sleeping aid pills I have left over from last year’s fiasco with Questran and Triptyl to help me fall asleep, because I knew if I didn’t chances were I’d be awake most/all of the night and finally fall asleep like around 5-7am and be just too exhausted to go to the dentist. And it worked – it was the second night of honest to god honest sleep I’d gotten in two weeks. The other one was last week, when I finally got so exhausted after about of week of that half awake/half asleep/was I sleep at all? thing that finally actually slept.

If this sleep thing doesn’t let up, I’ll have to start looking into it. I’ve had bad spells before, so I’m not quite worried yet – just bloody annoyed! Particularly because whatever sleep I ever do get, is always accompanied by dreams. So the quality of sleep isn’t as good, or  normal, as it could be.

Categories Health Personal

Health Update – Not Yay

I had the check up with the gastroenterologist today – the end result that I get to go in for a 3rd colonoscopy. Oh yay.   Calprotectin which has been all up and down over the last 3,5 years is up to around 1150 now which is my highest ever (before it was 650) and the gastroenterologist says it can’t be because of byle mal-absorbson. 1150 sounds high but I’ve read and it can be several thousands – even over 10000 – in “serious” bowel diseases such as Crohn’s Disease. So I doesn’t overly worry me, more like makes me curious.

The colonoscopy may or may not reveal a cause – he says the Calprotectin indicates could be a tear in mucous membrane somewhere in the bowel, but wondered about the 2010 colonoscopy didn’t show anything if so because diarrhea had been going on for a little over a year at that point – based on the previous colonoscopies. And then, even though a second capsule endoscopy may be in order if the colonoscopy doesn’t show anything. Even though a capsule endoscopy was just done in February. Fun fun fun. Argh!

Continue reading Health Update – Not Yay