- Got my second COVID-19 vaccine today! First one was Astra Zeneca in three months ago in February, this second one was the Moderna one. Didn’t get side effects apart from the usual sore muscle in February, soon I’ll see what happens with this one!
- Saw a neurologist last week because my migraine symptoms have changed – they’re often in a new place now, and in February, I had the very first aura I’ve ever had. So far it’s the only time. We’re gonna try to bump up Propral (depends on whether I can handle without fainting because if affects blood pressure) to see if it helps. If not/not enough, we have a plan in place to try Aimovig, the biologic, starting in January. I have to keep a detailed migraine diary the rest of the year to make sure I qualify for Aimovig.
- So I’m cautiously optimistic because Aimovig, but it’s also it’s my last hope as it stands now – if a biologic doesn’t work, there’s nothing left to try and only maybe menopause can improve my migraines then.
- Having problems with Ferritin since last summer. Started taking iron in November by January the ferritin had got a little better, just about as much as could be expected for 2,5 months. But in April’s labs, no change from January 🙁 I’m so damn tired all the time, I’m starting to run out of patience with the shitty ferritin!
- Applying for disability retirement again, my doctor already sent it the doctor’s thingy (can’t remember the word…) needed and now KELA just needs an application from me. I filled it in online, but need to write up a txt file too because all my illnesses and their various effects were too much for the allocated number of characters allowed in their online forms. Gonna do that tomorrow or day after. I do love that this can all be done online – the last time I applied I had to download a pdf, fill it in and then either upload it via the message center along with an extra txt for the same reason or print them and send via snailmail. Now the application itself is fillable online too 😀
- Both my doctor and I think that I probably won’t get the disability retirement now either (they are too strict about it if you are unemployed when you become disabled; it’s an acknowledged problem due to prejudices about unemployed people) but that it helps to build a history about doctors -thingies- showing you are unable to work and applications even if they are rejected. Black on white, medical history and history showing you’ve haven’t improved even with rehabilitation etc. so at some point it’ll get accepted, even if it takes years and years.
- The 300 days of long term sick leaves will run out at the end of June; if I don’t get disability I’ll have to return to unemployment benefits which is really stupid because in reality I’m not able to work, and that means only extra work for the unemployment agency and more stress for me :_( But there’s no other place for people who run out of long term sick leave and don’t get disability 🙁
Answers to this week’s questions at the friday five. Picture from Pixabay.
1) What is your favourite food?
When I go out to eat: Lehtipihvi (I think that’s minute steak in English? That very thin steak that’s grilled) with french fries. When I make it myself: mashed potatoes with real butter and milk. And I LOVE home made bread.
2) What is your favourite food preparation method?
I don’t really prefer one method over the other. Grilling/barbecue is rare (I and the people I visit don’t own a grill) so it’s always a treat when I get it somewhere.
3) What is your favourite cuisine or style of cooking?
I guess what I mostly grew up with. We didn’t have foreign cuisines here back in the 70s/80s (Chinese, Italian etc.) so we mostly ate just regular Finnish food. Potatoes, fish fingers, meatballs with gravy, various casseroles, boiled rice with oven cooked chicked. I’m a picky eater, not adventurous at all and I don’t like cooking (baking’s where it’s at!) so I usually stick to about a dozen dishes I like.
4) Do you have any dietary restrictions and if so what are they?
Yeah, I had food allergies as a kid, used to be really allergic to citrus fruit and still can’t eat them too much or I might break out in a rash. I also have some considerations due to Crohn’s Disease which change depending on how bad my Crohn’s symptoms are. Such as sima (mead) which I can have none at all if the symptoms are really active, or a conservative amount a day if Crohn’s is good at the time (meaning not as much as I could drink a day back when I didn’t have Crohn’s yet). It’s better now that I was 5-10 years ago because my Crohn’s is better under control now.
5) If you could introduce the whole world to one ingredient to improve their culinary experience, what would that be and why?
I can’t think of a single thing. I think it’d just recommend trying things like mashed potatoes or steaks without gravy (gravy hides the taste IMO). Also maybe try to use spices other than salt and pepper to season your food – at least that’s something I could do better at!
Answers to this week’s questions at the friday five. Picture from Pixabay.
1) What’s the furthest place you’ve traveled to in the last 12 months?
About 30 minutes in a city bus… so not far at all!
2) What’s the most interesting small town within driving distance?
I don’t know! Nothing’s ever stood out to me…. but then I’ve always been more interested in going to Helsinki or Tampere, or going to see a cool nature place or a ruin, and those tend to be outside towns.
3) What’s the coolest tourist attraction in your city?
As far as I’m concerned, it’s the Turku Castle! I love castles 😀 I suppose we also have nice museums and museum ships, and also the church (Tuomiokirkko) and old town of Turku, and even sports. There’s probably something for everyone!
4) What was your favorite road trip you took as a kid?
The one in the mid-80s when went on a camping trip all the way through Finland up to Lapland 😀 The trip took 4 weeks and I loved everything about it!
5) How often do you feel like you’ve got to get away?
Physically? Occasionally. That also usually means I a need see and talk with family and/or friend in person – I don’t mean things like a few nice words exchanged with the cashier in the grocery store, but really talk with someone.
Mentally? Every week. I’ve always loved immersing myself in fiction, especially when they take place in a location unknown to me, but if I’m unable to read fiction or fanfic for whatever reason, or just too busy to do it for like a week, I’ll get twitchy! It’s like an holiday from my own mundane life, first because I hated school as a child, then because of unemployment and then, especially in the last decade, when all the health issues I have started piling on.
The Friday Five question for today. Picture snagged from Pixabay.
1) Do you like to drive?
I like it fine, but what really gives me pleasure is the freedom and independence it gives me – meaning I don’t need to rely on bus schedules, or factor in how long a shopping trip to a big store (one with groceries, clothes, work tools etc) will take using a bus (three hours). I’ve and we’ve always shopped daily groceries in a nearby groceries-only shop. Big store shopping trip is for when you need more, or stock up on flour or washing liquids/powders or need to buy clothes because those big stores always take a lot more time to shop in because they’re so big that just walking through them takes time! When I had a car I was also able to take jobs out of town, and about half of them I wouldn’t have been able to take at all, or the commute would’ve been unpleasantly long. So for me, owning a car means freedom and independence.
2) Do you own (or have regular use of) a car? What kind is it?
Not for the last 5 years or so. I used have my Mom’s car, a 2000 three-door hunchback Toyota Corolla for about 15 years because they didn’t need a second car anymore. But what with my chronic illnesses making me dangerously tired to drive for several years/the car windows freezing on the inside in the winter and being a bitch to scrape and then fogging up too much see something/my needing to drive only short distances (5-15 mins) most times/there’s a good bus services in my city thankfully/the car getting to very old so for all that we finally decided to sell it.
Frankly the bus service is so good here in my city that I haven’t needed to even think about owning a car. The only reason I took my Mom’s car was because otherwise it would’ve gone unused. Since we sold it, I’ve used a taxi a few times coming from the ER/hospital, and those times frankly it’s better to use a taxi or a bus, because there’s always a chance I’ll be taken in to a ward for a day or longer (a week, the last time) so if I went by car then I’d maybe have the problem of parking, or due to the medication given me I might not be allowed to drive back anyway. The parking is only available for a few hours, a day at the most and when you’re in the hospital, the last thing you want to worry about is going out to feed the meter, or a huge parking bill and car being towed away because of not feeding the meter.
3) What is your favorite optional feature on a car?
Windshield that doesn’t freeze on the inside, and then fog up after scraping it!!! Seriously though… I don’t know! I haven’t kept up with what new cars have by default, much less what bells & whistles could be ordered as extra. My car didn’t have car radio or music player, and I always dreamed of having a car with one when I was younger. My friends either don’t own a car, or own a very basic, cheapest model with no bells & whistles. The one time I was driven by a acquaitance whose car did have all the bells & whistles, she didn’t know how to use any of them! *mind boggles* I suspect I’d love to have all the bells & whistles!
4) How much does gasoline currently cost where you live?
I don’t know! I haven’t needed to know for the past five years or so so I haven’t been paying attention. I only know that bus tickets keep getting more and more expensive).
5) What is the longest car trip you have taken?
When I was like 9 (so about 1983), we went on a summer trip from our home town Turku, all the way through Finland to Lapland. We’d drive 3-5 hours a day, camp in a tent in a camping area and often we’d stay in a place for a day or two as turists. Up in Lapland I think we stayed like a week, and then drove down a different route, again camping every night in camping areas. The whole trip took 4 weeks and was probably something like 2500-3000 kilometers of driving all in all, maybe going by Wikipedia. That’s the longest trip I’ve ever been on, and obviously I wasn’t driving, being a little kid 🙂 My Dad did all the driving because Mom didn’t yet have driver’s license at the time. The next summer we also went on a car trip, this time only about half-way up to somewhere around Rovaniemi level. This was the trip where we for the first time noticed that something was going on with Dad (turned out to be a brain tumor that grew back three times, he died in 1989 of it). But I have very good memories of these trips and of the red Lada we had 🙂
As an adult, and driving myself either all the trip or half of the trip, are probably the adventures from our home town Turku to Finland’s capital Helsinki we did with my best friend when we were in our 20s. I can’t remember the reasons for the other trips, but our first one was to go to the Korkeasaari zoo.